Humanitarian actors are becoming more aware of the gaps in data related to people with disabilities. This is crucial because missing data can mean people with disabilities are invisible in needs assessments and other critical areas. The lack of data can be a matter of survival for them.

Without better data, people with disabilities remain unseen in various aspects of humanitarian response, including targeting, protection analysis, and programme design. The issue is not just that disability is undercounted, but also how humanitarian systems interpret the absence of data. Further information on this issue is available, highlighting the importance of addressing these data gaps to ensure people with disabilities are not overlooked in crisis responses.